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Found 6 results

  1. Cerebral palsy can make life difficult. Movement and communication can become a challenge. The differences those challenges present give those with cerebral palsy a unique perspective on the world, one that can be hard to understand for those without the condition. However, that doesn't mean that kids or adults with cerebral palsy don't need love or connection. They dream just as big as anyone else. October 6th is World Cerebral Palsy Day, a time for everyone to consider the community of people living with the condition alongside all of us. Those with cerebral palsy travel a difficult road with all kinds of challenges both physical and mental. Their perspectives on the world teach us the importance of creating more accessible environments, buildings, and devices for those who might lack the ability to effectively move across short or long distances - or even play games. With input from physicians and numerous groups including the Cerebral Palsy Foundation, Microsoft was able to release the Xbox One Adaptive Controller, a device that allows those with conditions affecting their mobility to game with a wide variety of peripherals that can be mapped to different buttons on a traditional controller. Developers on the software side of things in the games industry have been creating different in-game settings to accommodate those who might have a hard time playing due to audio or visual impairment or even easier difficulty settings that allow everyone to experience their games. One of the people trying her best to make the world a better place for kids with cerebral palsy is Boston Children's Hospital's Miracle Child Stella and her mother. Born over a month early, Stella had numerous complications while growing up. Her mom had to call 911 numerous times to have her resuscitated and it became clear early on that Stella had cerebral palsy. As she grew older, her mom found it difficult to do little things like take her to the beach or go on walks. Stella's grandfather had an idea: A beach buggy. The device Stella's grandfather created out of PVC piping and four wheels altered the family's life: Going down to the beach was so much easier. I could just put her in the chair and we could go over all types of terrain. Even just going on field trips for her, like we went apple picking on a field trip and we were able to bring the buggy. And then we realized, after we had her buggy, that we were able to take her for walks along the street which was just awesome. After experiencing how much the buggy changed their lives, Stella and her mom started a non-profit, Stepping Stones for Stella, a group that has helped hundreds of families to open up the world for those with cerebral palsy. "It’s not an easy road at first," says Stella's mom, "but it gets easier — and less scary.” Extra Life is proud to be able to support kids like Stella in Children's Miracle Network Hospitals around the United States and Canada. Thank you to everyone who helps build up facilities like Boston Children's Hospital with the best equipment, buildings, and people to make sure that every child who comes through their doors gets the care and attention they need. Don't forget to sign up for Extra Life to help sick and injured kids in hospitals around the US and Canada by playing games!
  2. Cerebral palsy can make life difficult. Movement and communication can become a challenge. The differences those challenges present give those with cerebral palsy a unique perspective on the world, one that can be hard to understand for those without the condition. However, that doesn't mean that kids or adults with cerebral palsy don't need love or connection. They dream just as big as anyone else. October 6th is World Cerebral Palsy Day, a time for everyone to consider the community of people living with the condition alongside all of us. Those with cerebral palsy travel a difficult road with all kinds of challenges both physical and mental. Their perspectives on the world teach us the importance of creating more accessible environments, buildings, and devices for those who might lack the ability to effectively move across short or long distances - or even play games. With input from physicians and numerous groups including the Cerebral Palsy Foundation, Microsoft was able to release the Xbox One Adaptive Controller, a device that allows those with conditions affecting their mobility to game with a wide variety of peripherals that can be mapped to different buttons on a traditional controller. Developers on the software side of things in the games industry have been creating different in-game settings to accommodate those who might have a hard time playing due to audio or visual impairment or even easier difficulty settings that allow everyone to experience their games. One of the people trying her best to make the world a better place for kids with cerebral palsy is Boston Children's Hospital's Miracle Child Stella and her mother. Born over a month early, Stella had numerous complications while growing up. Her mom had to call 911 numerous times to have her resuscitated and it became clear early on that Stella had cerebral palsy. As she grew older, her mom found it difficult to do little things like take her to the beach or go on walks. Stella's grandfather had an idea: A beach buggy. The device Stella's grandfather created out of PVC piping and four wheels altered the family's life: Going down to the beach was so much easier. I could just put her in the chair and we could go over all types of terrain. Even just going on field trips for her, like we went apple picking on a field trip and we were able to bring the buggy. And then we realized, after we had her buggy, that we were able to take her for walks along the street which was just awesome. After experiencing how much the buggy changed their lives, Stella and her mom started a non-profit, Stepping Stones for Stella, a group that has helped hundreds of families to open up the world for those with cerebral palsy. "It’s not an easy road at first," says Stella's mom, "but it gets easier — and less scary.” Extra Life is proud to be able to support kids like Stella in Children's Miracle Network Hospitals around the United States and Canada. Thank you to everyone who helps build up facilities like Boston Children's Hospital with the best equipment, buildings, and people to make sure that every child who comes through their doors gets the care and attention they need. Don't forget to sign up for Extra Life to help sick and injured kids in hospitals around the US and Canada by playing games! View full article
  3. The only thing better than Extra Lifers coming together to support their local kids is Extra Lifers coming together in record-setting ways to support their local kids. Earlier this month, Extra Lifers from across central Canada descended upon Winnipeg to participate in Extra Life North, a weekend-long fundraiser to help the kids in the Children's Hospital Foundation of Manitoba. The event came together due to the diligence and dedication of the Extra Life guild leadership in Winnipeg paired with the assistance of Bold Commerce. Seeing Extra Lifers on the news doing good in their communities never gets old. Stephane Maynard, Bold Commerce's co-founder, appeared on CTV News in Winnepeg to describe the event's mission saying, "Our goal for today is to raise over $50,000. 100% of the proceeds go straight to the Children's Hospital Foundation of Manitoba. It helps kids in need who are sick or injured and goes directly to whatever the hospital needs at that time to make and deliver proper care." We're thankful for people like Stephane and Bold's Nadia Selby for making Extra Life North possible. The event was originally planned to take place in a sporting arena, but plans for that fell through. Luckily, Bold Commerce was able to step in and offer Extra Life North space in their Winnipeg-based headquarters. That's no small feat, especially considering that Extra Life North was considered by its organizers to be the largest Extra Life event in central Canada to date! Extra Life North surpassed all expectations despite the setbacks organizers experienced. They set a fundraising goal of $50,000 USD. While there was some doubt as to whether the over 235 gamers in attendance would be able to bring in that much, the event decided to shoot for the stars. The total raised by Extra Life North participants now tallies at over $55,000 USD! That's freaking incredible and we are blown away by what Extra Lifers have been able to achieve in Winnipeg. Kirk Veerback, a member of Winnipeg's Extra Life guild leadership, appeared on CBC Winnipeg to talk about the event: It is all about gaming in general. It is not exclusive to video games. It can be board games, card games, tabletop games like D&D. Whatever you like doing, you can do it for Extra Life. It's always nice to get the board gaming folks out to these events and take a break from looking at screens all 24 hours and go play, you know? ... We have a place for power and for you to sleep, but bring your own TVs, game consoles, and whatever you're planning on doing. In addition to the gamers, Extra Life North featured a number of children who have been through Children's Hospital Foundation of Manitoba as well as the support of numerous Canadian companies and celebrities. The Royal Bank of Canada teamed up with Olympians Jill Officer (Olympic gold medalist and holder of two World Curling Championship titles) and James Lavallée (Canadian Olympic kayak team member) to get them to Extra Life North. The two interacted with the kids and even got in on the gaming themselves! Nathan Beaulieu of the Winnipeg Jets even made an appearance, challenging the champions to some of his favorite games. Finally, Winnipeg's most widely acclaimed morning radio host, Ace Burpee, served as the MC for the event, helping to keep up the energy for the duration of the 24-hour marathon. This isn't Extra Life North's first year running, either. Logan Quatamber, the Champion Child from 2016, has been attending the event over the years, watching it grow. Talking with CHVN radio, he explained what he loves so much about it, "It's awesome to see what all the volunteers are doing. It's just amazing what they put on, as far as the Children's Hospital, and what the outcome is. You come here, play games, and raise a lot of money. It gives me a good feeling coming in here ... even though it's a fun time, it's all going towards something and means something." Here's to many more years of changing the lives of children at Extra Life North! Don't forget to sign up for Extra Life to help sick and injured kids in hospitals around the US and Canada by playing games!
  4. The only thing better than Extra Lifers coming together to support their local kids is Extra Lifers coming together in record-setting ways to support their local kids. Earlier this month, Extra Lifers from across central Canada descended upon Winnipeg to participate in Extra Life North, a weekend-long fundraiser to help the kids in the Children's Hospital Foundation of Manitoba. The event came together due to the diligence and dedication of the Extra Life guild leadership in Winnipeg paired with the assistance of Bold Commerce. Seeing Extra Lifers on the news doing good in their communities never gets old. Stephane Maynard, Bold Commerce's co-founder, appeared on CTV News in Winnepeg to describe the event's mission saying, "Our goal for today is to raise over $50,000. 100% of the proceeds go straight to the Children's Hospital Foundation of Manitoba. It helps kids in need who are sick or injured and goes directly to whatever the hospital needs at that time to make and deliver proper care." We're thankful for people like Stephane and Bold's Nadia Selby for making Extra Life North possible. The event was originally planned to take place in a sporting arena, but plans for that fell through. Luckily, Bold Commerce was able to step in and offer Extra Life North space in their Winnipeg-based headquarters. That's no small feat, especially considering that Extra Life North was considered by its organizers to be the largest Extra Life event in central Canada to date! Extra Life North surpassed all expectations despite the setbacks organizers experienced. They set a fundraising goal of $50,000 USD. While there was some doubt as to whether the over 235 gamers in attendance would be able to bring in that much, the event decided to shoot for the stars. The total raised by Extra Life North participants now tallies at over $55,000 USD! That's freaking incredible and we are blown away by what Extra Lifers have been able to achieve in Winnipeg. Kirk Veerback, a member of Winnipeg's Extra Life guild leadership, appeared on CBC Winnipeg to talk about the event: It is all about gaming in general. It is not exclusive to video games. It can be board games, card games, tabletop games like D&D. Whatever you like doing, you can do it for Extra Life. It's always nice to get the board gaming folks out to these events and take a break from looking at screens all 24 hours and go play, you know? ... We have a place for power and for you to sleep, but bring your own TVs, game consoles, and whatever you're planning on doing. In addition to the gamers, Extra Life North featured a number of children who have been through Children's Hospital Foundation of Manitoba as well as the support of numerous Canadian companies and celebrities. The Royal Bank of Canada teamed up with Olympians Jill Officer (Olympic gold medalist and holder of two World Curling Championship titles) and James Lavallée (Canadian Olympic kayak team member) to get them to Extra Life North. The two interacted with the kids and even got in on the gaming themselves! Nathan Beaulieu of the Winnipeg Jets even made an appearance, challenging the champions to some of his favorite games. Finally, Winnipeg's most widely acclaimed morning radio host, Ace Burpee, served as the MC for the event, helping to keep up the energy for the duration of the 24-hour marathon. This isn't Extra Life North's first year running, either. Logan Quatamber, the Champion Child from 2016, has been attending the event over the years, watching it grow. Talking with CHVN radio, he explained what he loves so much about it, "It's awesome to see what all the volunteers are doing. It's just amazing what they put on, as far as the Children's Hospital, and what the outcome is. You come here, play games, and raise a lot of money. It gives me a good feeling coming in here ... even though it's a fun time, it's all going towards something and means something." Here's to many more years of changing the lives of children at Extra Life North! Don't forget to sign up for Extra Life to help sick and injured kids in hospitals around the US and Canada by playing games! View full article
  5. Situated in the heart of Honolulu, the Kapi’olani Medical Center for Women & Children treats the children of Hawai’i. Despite its relative isolation, the staff and facility are able to provide excellent care to the kids who come to them for help. Since Kapi’olani is a Children’s Miracle Network Hospital, Extra Lifers in the area have supported the hospital for years now, giving the hospital access to additional resources they can use to help kiddos with a wide variety of medical issues big and small. Julie Kobayashi was an energetic and rambunctious child. At just 11 years old, she knew she loved video games, food, sleep, and playing clarinet in band. Julie had been pushing herself to practice for an upcoming school performance and began feeling like she was coming down with a case of stomach flu. However, something about her symptoms didn’t seem right to her parents. They took her to see her doctor who ordered some routine blood tests, but as she walked down the hall of the doctor’s office she began seeing white spots and her vision went blurry. From there, Julie was rushed to Kapi’olani so doctors could figure out what was happening to her. Once admitted to Kapi’olani, Julie’s story took on an even scarier tenor. Doctors discovered that her heart was enlarged, diagnosing her with dilated cardiomyopathy just a few weeks short of her 12th birthday. That diagnoses meant that her heart wasn’t pumping blood through her body correctly, moving blood at a more than 90% reduced rate. After admitting her to Kapi’olani’s Pediatric Intensive Care Unit to stabilize her, the talented hospital staff and doctors helped both Julie and her family to understand the situation: She would need a heart transplant. Being isolated from the mainland, Kapi’olani doesn’t have access to the donor organs that hospitals across the continental United States do. Julie would need to be transported to the West Coast for the operation. Thankfully, Kapi’olani is able to field a communicative team of nurses and specialists to transport children to mainland facilities. “The transport team was excellent. They called us before they left. They called us when they landed. They called us when they handed her off in Seattle,” said Julie’s mom, Lori Kobayashi, “They really, really tried to make it less painful for us to let her go.” Julie got her heart thanks to the quick work of Kapi’olani’s medical staff and the surgeons at the pediatric transplant center in Seattle. That was years ago, and Julie is now making the most of her heart as a healthy 18-year-old senior in high school. She still plays video games and practices clarinet in her school’s band, but she has developed a love of lion dancing, drawing, and anime. Julie has also been accepted at the University of Hawai’i and received the UH Heart of a Lion Scholarship. On top of her academics and figuring out college admissions, Julie also brought her enthusiasm to bear for the Kapi’olani hospital. Julie served as the face of Kapi’olani as their miracle child from 2016-2017. She also participates in Extra Life, giving back to the hospital that helped her all those years ago. If you’d like to support her efforts, you can find her fundraising page here. However, Julie doesn’t fight alone for the kids of Kapi’olani. Hundreds of people work to raise money for Kapi’olani every year. Among them, Extra Life Ambassador Sevadus works tirelessly to help the children who come through Kapi’olani’s doors every day. Sevadus streams as part of the Mindcrack Team to raise money for Kapi'olani. The amount of good going on in Hawai’i for its hospitals is simply breath-taking. --- Please join Extra Life in making a difference for the kids and families who seek help at your local children’s hospital.
  6. Situated in the heart of Honolulu, the Kapi’olani Medical Center for Women & Children treats the children of Hawai’i. Despite its relative isolation, the staff and facility are able to provide excellent care to the kids who come to them for help. Since Kapi’olani is a Children’s Miracle Network Hospital, Extra Lifers in the area have supported the hospital for years now, giving the hospital access to additional resources they can use to help kiddos with a wide variety of medical issues big and small. Julie Kobayashi was an energetic and rambunctious child. At just 11 years old, she knew she loved video games, food, sleep, and playing clarinet in band. Julie had been pushing herself to practice for an upcoming school performance and began feeling like she was coming down with a case of stomach flu. However, something about her symptoms didn’t seem right to her parents. They took her to see her doctor who ordered some routine blood tests, but as she walked down the hall of the doctor’s office she began seeing white spots and her vision went blurry. From there, Julie was rushed to Kapi’olani so doctors could figure out what was happening to her. Once admitted to Kapi’olani, Julie’s story took on an even scarier tenor. Doctors discovered that her heart was enlarged, diagnosing her with dilated cardiomyopathy just a few weeks short of her 12th birthday. That diagnoses meant that her heart wasn’t pumping blood through her body correctly, moving blood at a more than 90% reduced rate. After admitting her to Kapi’olani’s Pediatric Intensive Care Unit to stabilize her, the talented hospital staff and doctors helped both Julie and her family to understand the situation: She would need a heart transplant. Being isolated from the mainland, Kapi’olani doesn’t have access to the donor organs that hospitals across the continental United States do. Julie would need to be transported to the West Coast for the operation. Thankfully, Kapi’olani is able to field a communicative team of nurses and specialists to transport children to mainland facilities. “The transport team was excellent. They called us before they left. They called us when they landed. They called us when they handed her off in Seattle,” said Julie’s mom, Lori Kobayashi, “They really, really tried to make it less painful for us to let her go.” Julie got her heart thanks to the quick work of Kapi’olani’s medical staff and the surgeons at the pediatric transplant center in Seattle. That was years ago, and Julie is now making the most of her heart as a healthy 18-year-old senior in high school. She still plays video games and practices clarinet in her school’s band, but she has developed a love of lion dancing, drawing, and anime. Julie has also been accepted at the University of Hawai’i and received the UH Heart of a Lion Scholarship. On top of her academics and figuring out college admissions, Julie also brought her enthusiasm to bear for the Kapi’olani hospital. Julie served as the face of Kapi’olani as their miracle child from 2016-2017. She also participates in Extra Life, giving back to the hospital that helped her all those years ago. If you’d like to support her efforts, you can find her fundraising page here. However, Julie doesn’t fight alone for the kids of Kapi’olani. Hundreds of people work to raise money for Kapi’olani every year. Among them, Extra Life Ambassador Sevadus works tirelessly to help the children who come through Kapi’olani’s doors every day. Sevadus streams as part of the Mindcrack Team to raise money for Kapi'olani. The amount of good going on in Hawai’i for its hospitals is simply breath-taking. --- Please join Extra Life in making a difference for the kids and families who seek help at your local children’s hospital. View full article
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