Some have asked - "Why do you do this 'ExtraLife' thing?" For kids like my Grand-nephew Cyrus. Last year he celebrated his 3rd Birthday, began attending developmental preschool, and took his first steps!
None of this would have even been possible with out Monroe Carell Jr Children's Hospital. Who knows what amazing things will happen for him THIS year!
At 28 weeks gestation, we learned that Cyrus had a “constellation of defects” that pointed to a genetic disorder. His mom, my neice, had to have an amnio-reduction procedure at Vanderbilt two weeks later, in order to avoid amniotic fluid-related complications. At the same time, the team took extra fluid in order to determine whether there was a genetic cause for Cyrus’ many defects.
Cyrus was born by emergency C-section on October 22, 2013. He had an APGAR score of 2. The NICU had already been alerted about his condition, and we already had a team dedicated to each of his systems. The entire medical staff there were attentive, supportive, and collaborative with us regarding his care and treatment.
There was no stone left unturned; because of Monroe Carell Jr Children’s Hospital, Cyrus, for whom the chromosomal anomalies should have been a death sentence, is alive to celebrate his third birthday and reach new milestones.